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Springer Scientific

Springer Scientific Publishing

 

 

SECTION I:  SURVEILLANCE OF THE SURVIVOR

  1. The long and winding road: Transitions in care for the childhood cancer survivor.  AU: Raj Venkatramani, MD, Children's Hospital Los Angeles and David Freyer, DO, Children's Hospital Los Angeles
  2. Developmental Considerations in the Transition from Child and Adolescent to Adult Survivorship  AU: Cynthia Gerhardt, Ph.D., Nationwide Children’s Hospital; Marit Tuinman, Ph.D., University Medical Centre, Groningen, the Netherlands; & Kathryn Vannatta, Ph.D., Nationwide Children’s Hospital.
  3. The European Experience of Establishing Guidelines for Surveillance of the Childhood Cancer Survivor  Roderick Skinner, PhD, MBChB, FRCPCH, Newcastle University, UK; Riccardo Haupt, MD, Instituto Giannina Gaslini, Genova, Italy; Lars Hjorth, MD, Skane University Hospital, Lund University, Lund, Sweden; Leontien Kremer, MD, Emma Children’s Hospital/Academic Medical Center, Amsterdam, The Netherlands; Renée L Mulder, PhD, Emma Children’s Hospital/Academic Medical Center, Amsterdam, The Netherlands

SECTION II:  SURVEILLANCE OF MEDICAL LATE EFFECTS

  1. Long Term Follow Up Roadmaps by Disease and Treatment.  AU: Lilibeth Torno, MD, CHOC Children’s Hospital/University of California, Irvine & Janet Hager, RN, CHOC Children’s Hospital
  2. Central Nervous System  AU:  Violet Shen, MD, CHOC Children’s Hospital/University of California, Irvine
  3. Endocrine System  AU: Wassim Chemaitilly, MD, St. Jude Children’s Research Hospital
  4. Cardiovascular System  AU: Nita Doshi, MD CHOC Children’s Hospital; Vivian Franco, MPH, University of Miami Miller School of Medicine; Anthony Chang, MD, CHOC Children’s Hospital; Steven Lipshultz, MD., Holtz Children’s Hospital in Miami
  5. Pulmonary System  AU: Tara Henderson, MD, MPH, Comer Children’s Hospital at the University of Chicago
  6. Renal, Genitourinary and Reproductive System AU: William Sohn, MD, University of California Irvine; F. Elena Marshall, MD, University of California Irvine; Krishnansu Tewari, MD, University of California, Irvine; Antoine Khoury, MD, University of California, Irvine
  7. Gastrointestinal and Hepatic Systems AU: Jacqueline Casillas, MD, Mattel Children’s Hospital UCLA, Amy Jacobson, PNP, UCLA Livestrong TM Survivorship Center for Excellence. 
  8. Musculoskeletal System  AU: Tao Ji, MD, People’s Hospital, Peking, China; James Hayden, MD, PhD, Oregon Health & Science University & Bang Hoang, MD, University of California Irvine
  9. Eye, Ear and Oral Health  AU: Jacqueline Casillas, MD, Mattel Children’s Hospital UCLA, and Amy Jacobson, PNP, UCLA Livestrong TM Survivorship Center for Excellence. 
  10. Hematopoietic Stem Cell Transplant AU: Paul Nathan, MD, Hospital for Sick Children, Toronto, Canada, Adam Gassas, MD, Hospital for Sick Children, Toronto, Canada, Jonathan Wasserman, MD, PhD, Hospital for Sick Children, Toronto, Canada
  11. Second Malignant Neoplasms AU: Smita Bhatia, MD, MPH, City of Hope

 


 

 

"Handbook of Long Term Care of the Childhood Cancer Survivor."

Grace A. Mucci, PhD, MS, ABPdN

Lilibeth R. Torno, MD

 

 

SECTION III:  NEUROPSYCHOLOGICAL EFFECTS

  1. Overview of Neuropsychological Late Effects  AU: Grace Mucci, Ph.D., M.S., ABPdN, CHOC Children’s Hospital & Beth Earhart, Psy.D., Lucile Packard Children’s Hospital
  2. Neuropsychological Outcomes of Children with Acute Lymphocytic Leukemia  AU: Peter Dodzik, Psy.D., ABPdN, ABN, & Randy Fulton, Psy.D., Northwest Behavioral Health Services
  3. Neuropsychological Effects of Pediatric Brain Tumors and Associated Treatment  AU: Karin Walsh, Psy.D., Children’s National Medical Center, Washington DC; Iris Palton, Ph.D., Children’s Hospital of Philadelphia
  4. Multicultural and Multilingual Considerations in Childhood Cancer Survivors.  AU: Christina M. Zebrowski, M.S., Loyola University, Baltimore, Maryland; Mairim Vega, Psy.D., Ponce School of Medicine and health Sciences, Ponce de Leon, Puerto Rico; & Antolin Llorente, Ph.D., ABPdN, Penn State Milton S. Hershey Medical Center, Hershey, PA

SECTION IV:  QUALITY OF LIFE AND PSYCHOSOCIAL FACTORS

    • Psychosocial Challenges and Adaptation in Long-Term Survivors of Childhood Cancer AU: Christopher Recklitis, Ph.D., MPH,  & Cori Liptak, Ph.D., Dana Farber Cancer Institute, Harvard Medical Center
    • Building Resiliency in Childhood Cancer Survivors:  Psychological Treatment Considerations.  AU:  Frances Baumgarten, Ph.D., Center for Cancer Support, Newport Beach, California.
    • Quality of Life During Palliative Care  AU: Gay Walker, RN, Providence Trinity Hospice Care

     

 

 

 

 

 

 

 

 

 

 

SECTION V:  RE-ENTRY AFTER TREATMENT

  1. Lifestyle Factors and Health Risk Behaviors  AU: Vida Tyc, Ph.D and James Klosky, Ph.D., St. Jude Children’s Research Hospital
  2. School Issues and Educational Strategies for Survivors of Childhood Cancer.  AU:  Kathryn Kirkpatrick, Ph.D., Nationwide Children’s Hospital
  3. Special Education and Civil Rights Law.  AU:  Michael Jewell, Esq, Jewell Law Offices, Orange, CA.
  4. Career and Vocational Outlook.  AU: Sujin Ann-Yi, Ph.D.,  MD Anderson Cancer Center;  Martha Askins, PhD, MD Anderson Cancer Center; Sandra Medina-George, MS, MD Anderson Cancer Center
  5. Rehabilitation Considerations in Pediatric Cancer Survivors  AU: Lauren Krivitsky, Ph.D., ABPP-CN,  Children’s Hospital of Philadelphia; Megan M. Blaufuss, M.S., OTR/L, Our Children’s House at Baylor, & Sara VanDenHeuvel, M.S., CCC-SLP, Children’s National Medical Center
  6. Neurocognitive Late Effects Among Childhood Cancer Survivors and interventions to Improve Cognitive Functioning.  AU: Martha Askins, PhD, MD Anderson Cancer Center; Sujin Ann-Yi, Ph.D.,  MD Anderson Cancer Center; and Bartlett Moore, III, Ph.D., MD Anderson Cancer Center
  7. Psychopharmacological Interventions in Childhood Cancer Survivors AU: Anna (Nina) Muriel, MD, Dana Farber Cancer Institute, Harvard Medical Center
  8. Integrative Medicine Strategies in Treating Long-Term Complications.  AU: Nicole Vincent, PhD, CHOC Children’s Hospital; Chinsun (Jin) Lee, MA, Pepperdine University; Grace Mucci, PhD, CHOC Children’s Hospital; and Lonnie Zeltzer, MD, UCLA
  9. Barriers and Disparities in Accessing Quality Care Amongst Childhood Cancer Survivors  AU: (Michael) Jacob Adams, MD, MPH & Katie Devine, Ph.D.,University of Rochester School of Medicine and Dentistry; and & Amino Alio, Ph.D., University of Rochester, Division of Social and Behavioral Sciences
  10. Educating and Preparing the Childhood Cancer Survivor for Long-Term Care:  A Curriculum Model for Cancer Centers:  Jenee Areeckal, MSW, Claudia Begino, LCSW, Christy Campo, CCLS, Marcos Di Pinto, Ph.D., ABPP/CN, Mary English, PNP, Janet Hager, RN, Heather Hawthorne, MD, Carol Lin, MD, Ruth McCarty, L.Ac., Jennifer Phan, B.A., Angela Salazar, RD, Lilibeth Torno, MD, Nadia Torres-Eaton, PsyD., ABPP,  CHOC Children’s Hospital/University of California, Irvine

 

SECTION VI: RESOURCES  Compiled by Beth Earhart, Psy.D., Lucile Packard Children’s Hospital, Palo Alto, CA

  1. Medical and Health Insurance
  2. Employment, Disability and Social Security
  3. Educational
  4. Family and Individual Psychological support
  5. Cognitive Rehabilitation

 

 

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